And She Sat In A Chair With Wheels

Thursday was the big day. I actually thought we were just measuring Adelaide, so I mentally prepared for her being fussy while I answered a bunch of questions about what she can and can’t do. I physically prepared by bringing snacks upon snacks. I wore my favorite scarf, because it makes me feel gorgeous.

adelaide wheelchair 1

 

But then he said, “I brought a chair for her to try out. The vendor dropped it off. It’s too small for her, but you can see what we are looking at for Addie.” I responded with the fakest enthusiasm I could muster. I was not ready to see Adelaide in the chair. All strapped in and not walking.

adelaide wheelchair 2

I was all smiles and overly positive. “Awesome. This is great. You’re such a big girl. This is great! What fun! Look at you, so big in that chair! This is so great!” The moment I had been dreading for more than two years was here and I was not ready.

adelaide wheelchair 4

 

I felt like I had given up our dream of walking. And then I felt guilty, because we have friends whose children will never walk. And so what? What if Adelaide never walks? The world doesn’t end. I realized that I have placed some finish line in my mind. Like walking is the end all milestone. Like walking validates all the therapy. Like walking makes up for everything she can’t do. But it’s just motion. It’s not a measure of her life. Or her impact on everyone around her.

But the chair, it will improve all our lives. We will be able to go places that can’t accommodate her stroller. Adelaide will be able to sit at tables when we go to Chick-fil-A. She will be able to see things from a different vantage point. She will, hopefully, be able to steer it herself and have some independence.

And if she never walks, well, that’s not even an option. She will walk with Jesus someday on a new Earth.

And maybe we will get to experience Adelaide walking here, and maybe we won’t. If we do, we are having a Bumblebee party. A huge party.

But I am done fixating on bipedal locomotion. Adelaide is more than legs. And she deserves a mom who believes in her, but sees walking for what it is: a skill. And a wheelchair for what it is: a tool.

adelaide wheelchair 3

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5 thoughts on “And She Sat In A Chair With Wheels

  1. Judy says:

    I’ve been reading your blog for some time and seeing her in the chair brought tears. I don’t know what you’re going through, but you’re the perfect mommy for her (as well as your other children), stay strong and have hope. Every child has his or her own gifts that he or she brings to his or her family. Adelaide brings so much love to your family and the wheel chair doesn’t define her. She will always be her sweet little self.

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  2. Tricia McKay says:

    I love you, Lyndse Ballew. Your honesty brings tears to my eyes. How blessed your family is to have you and I am to know you. Your sweet Adelaide has a wonderful mommy.

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  3. rainy says:

    She looks so grown up in it! Hugs

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  4. […] and napped. Completely peaceful in her completely accommodating chair. It’s amazing how the right tools can make all the […]

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  5. […] truth is that hair doesn’t define Adelaide. Just like her wheelchair doesn’t define her. But we have this ingrained desire to be seen as pretty. And our society often equates beauty with […]

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