[…] doesn’t mean she needs to be talked about all the time without being addressed. And on a day when we had three appointments at three different campuses, Miss Adele spent much of her day hearing people talk about her. But Caitlin talked to her. And to […]
[…] was Rare Disease Day. The one day a year when we get to raise awareness for our daughter and her friends. We make a blip […]
[…] to know would be made known. And that Adelaide would forgive me for 26 minutes of blood draws after three doctor appointments at three different hospitals. And I wondered how that terrible Disney show had ended. All that time reading the closed captions, […]
[…] we left that first and last meeting, I locked a tiny bit of hope away and it kept me going through the bloodwork and waiting and phone […]
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